My therapist Louis has taught me that when you take something out of your life, you need to replace it. In my case, I had to give up my 12-step support group due to PTSD, but I found a new support system in my blog community.
I’ve been blogging for over 10 years, and it’s become a lifeline for me. When I’m feeling down, I can always count on my readers to offer words of encouragement and support. They’ve helped me to feel less alone and more connected, and they’ve given me the courage to share my story in a safe space.
My birthday last week was a tough one, but your messages (& Judy — thanks for your email!) really helped me get through it. I’m so grateful for your kindness and support. Thank you for filling in the colors of faith into the empty lines. You make it possible.
As midnight approached last Saturday night, I felt like a broken-down, aging Cinderella. Instead of a pumpkin coach carriage, I reclined inside a rickshaw, glowing with strung neon blue glitter lights, a “Good Vibes” sign fluttering behind my wind-swept hair.
My Unplanned Rickshaw Ride
The familiar discomania tune “Stayin’ Alive” blasted on a continuous reel as the lean but powerful driver pedaled, snaking and snarling through the prism-lit, panoramic nighttime streets from the west side to our destination, Grand Central Terminal in New York City.
If you know me personally, you know two things: 1. I’m always reading a book of fiction. 2. I’m always mentally plotting a work of fiction. This past Saturday night, I felt like the unfolding scene created its own book of fiction.
Along our route, the driver expertly avoided a few near-collisions, including a head-on accident with a cab driver when he made a U-turn to drop me off right in front of Grand Central.
Stayin’ Alive was also the theme song of the day as the driver helped me power through a very unfortunate set of circumstances. It all started that morning with last-minute plans to stay overnight in New Jersey, where I had arrived by train from Connecticut. However, after a series of misunderstandings and mix-ups, by 9:30 pm, I had nixed those plans and, without another plan, boarded a train that I nicknamed “Tipsy Tracks” to Penn Station in New York City. I was exhausted when I arrived at Penn Station. I didn’t want to deal with the subway, so I tried to flag a taxi. I had a fairly new phone and had never gotten around to downloading the Uber app, and I was too tired to think straight enough to download it at the time.
Although all the taxis seemed off-duty or unavailable, a dirty brown mid-sized SUV suddenly zoomed out of the traffic and stopped directly in front of my rather dejected body, as the shadow of another birthday loomed three days ahead.
“Want a ride to Grand Central?” asked the rather innocent-looking man in his mid-40s, angling his body toward the passenger seat. He had clearly overheard me flagging down taxis.
I was exhausted and my legs were starting to ache, so I was tempted to just jump in his backseat. But then I remembered an ominous book I had read a few months ago, and the scene felt vaguely familiar.
“Who are you?” I asked, suddenly suspicious.
“Uber,” he said.
“Uber? I don’t have the app. I didn’t call you,” I replied.
“I’m off duty. I’ll take you to Grand Central for cash.”
I felt a glimmer of hope. I was tired and getting older, and I was ready for an easy way out. I felt as if I were a half person as I had written about in my last blog.
But then I remembered the name of the novel: Disappearing Earth by Julia Phillips.
The book begins with two young girls accepting a ride home from a stranger and then going missing.
I wasn’t a girl, but I was still vulnerable, an easy target.
The next vehicle that came by was a rickshaw with a couple in the backseat. My spirits fell, thinking that maybe I had to have a reservation to ride in one, since I had never ridden in a rickshaw in NYC or anywhere else. That was when I spotted another one that resembled a floating disco ball with a vacant seat.
“Excuse me …” I hollered to the driver, “Can you take me to Grand Central …”
Once the driver and I bargained and agreed on a rate (even in the midst of stress, I still hold tight to my frugal nature), the adventure began.
The ride was exhilarating and terrifying at the same time. The driver, as I mentioned, took some pretty crazy shortcuts, but he got me to the train station safe and sound. If I had accepted the ride earlier from the stranger in the SUV, by the time my birthday rolled away, I might have been one of the many missing people, hacked up and buried underneath some rural Pennsylvania soil.
I thanked him for helping me “stay alive” and wished him well, especially considering his daredevil pedaling.
“Hope you stay alive too!” I called out sarcastically to him before I ran into the station and managed to grab a train home to Connecticut. My dear friend Camille, whom I called earlier, was waiting for my 1:45 a.m. arrival at the station. (A true friend is someone who is always there for you, no matter what, especially in the wee hours of the morning!)
Interestingly, today is the big day, but it really means nothing to me anymore. However, Bryan’s comment made me think twice about the blog I wrote last week. He said, “I often wonder if the reason I feel halved is because I moved away from what I found meaningless.”
Although I identify as a half person for other reasons, this made me widen my perspective and think that maybe I have found a new meaning in life after all. And maybe this meaning doesn’t need a meaning because it just is. It’s like being in a rickshaw at a climactic point in your novel of life, not knowing what’s coming around the bend.
As I plan to meet Brother Paul later today and then my dear daughter and her boyfriend, the kids’ godmother, and possibly a few others, I can’t help but smile, knowing that I’ve received my wish: a very low-key birthday after all.
So, as I mark my birthday today, I am grateful for the people who have loved and supported me along the way, including all my fellow bloggers. They have been my neon-lit rickshaws through those saturnine nights that cast a pall over my world, making it seem like a lonely place of ghosts and shadows.
I know that I am not alone in experiencing these dark times. But I also know that we can all find light, hope, and faith, even in the darkest of places. We can find community and connection, as well as developing the strength to pedal through as long as we trust our gut and don’t get into just any stranger’s vehicle.
Smart. Cute. Not-so-cute. We all have inner self-identifiers.
We all have ways of defining ourselves, whether consciously or unconsciously. We might think of ourselves as smart, funny, kind or brave. We might also think of ourselves as less than perfect, with flaws and limitations.
A few weeks ago, I started to understand all on my own that I am now a “half person” as opposed to the whole person I once was before our family tragedy. For me, I find it very empowering to define myself in this manner.
I used to be afraid of my limitations. I thought they made me weak and inadequate. But now I see them as a source of strength. They’ve taught me to be more realistic about my expectations and to appreciate the things I can do.
Looking back, I appreciate even more the time I spent watching the aging process of my parents. As they grew older, they became acutely aware of their limitations. For instance, after my dad’s retirement at 70, he used to be able to work about eight hours a day in the garden. But as he grew older, he cut his gardening back to a daily hour or two. My dad would come into the house after gardening, his face, the color of the beets he grew in the rich soil, and dripping from sweat, and announce with conviction, “I’m not so good anymore.”
There wasn’t a hint of self-pity in his tone. Instead, it sounded as if he had landed at a new place in life, and he opened his arms wide with acceptance. He left me with a poignant picture of what it means “to age gracefully.”
That place parallels with how I feel about being a half person. I’ve retired from my Atlas position of holding up the world, and now I just lean into it.
I used to think I had to be strong and capable all the time. I needed to be the Atlas of my family and friends, holding up the world for them too. But now I know I can’t do that. I’m just a half person, and that’s okay.
Given this new state, I am proactive and fiercely protective of myself. I’m not going to let anyone take advantage of me or make me feel bad about myself and how I feel. Walking on egg shells is becoming an impossible feat for me.
For obvious reasons, I steer clear of the real-life nemesis in my life and others who fall into that category. Right now I’m not up to exposure therapy of any form. And just because that particular therapy is not in the cards at the moment, it may be at another time.
Anyway, all this being said, I want to address two things.
First, I recently learned that my eye doctor had faced some serious sexual assault criminal charges in 2020. I’m still processing the information and at the current time, I have no updates about the crimes, which also allegedly included a minor. On the one hand, I’ve never had any personal experience with him that would make me think he’s guilty of any criminal acts. On the other hand, I’m a half person, and, as already mentioned, I guard myself fiercely and certainly don’t intend to invite any more stress than necessary into my life.
Second, my birthday is coming up next Tuesday. I’m really not looking forward to it. I wasn’t too thrilled about my birthday before I became a half person, but now it’s utterly meaningless. I used to be afraid of growing old and becoming wrinkled and frightful, but now I couldn’t care less. So it’s not about growing old and falling out of grace. It’s about staying in grace, which means being true to myself, and, to me, the day symbolizes just another day of the year.
So, here’s what I’m going to do on my birthday. I’m going to be alone. I’m going to minister to my half person. I’m going to be honest with myself and with others, the way I used to be with my son. He would always listen to me without judgment, and he would always say, “That sucks!” I miss that.
My life as a half person has made me surrender so much unnecessary energy. It has also made me realize that nothing has the same meaning as it used to. Everything is vanilla now. But I’m okay with that, too, and vanilla has always been one of my favorite flavor choices.
I do, however, find meaning in other people’s lives and in the joy they find. It fills my empty vessel with hope and faith. I know that I’ve been passed up for a number of invitations over the years because people see me as a walking image of pain. But I don’t take it personally. I’m grateful for the joys I’ve had the opportunity to share in, such as my dear friend Pat’s 85th birthday surprise party in 2020. It was a time of such raw pain, but it was also a time of great joy. I remember Pat’s radiant joy, and I felt her deep connection and compassion for life, however fleeting it was for me. These are the moments that get me through my vanilla life. These are the moments that make it all worth it.
I’m not sure what the future holds for me. I may never find meaning in life again. But I’m okay with that too. I’m content to live my life in vanilla, as long as I have the occasional cherry on top.
Last Monday night, the weather was perfect, having cooled down after a stifling heatwave, when Santana and his band took the stage at 8 p.m. sharp at the nearly sold-out 1001 Rainbows, 2023 Tour, performance at the Hartford HealthCare Amphitheater in Bridgeport, Connecticut. I attended the concert with Anna, one of my dearest friends since childhood.
Oye Como Va! The show started off with a bang and the energy immediately electric. Carlos Santana’s guitar playing was as virtuosic as ever, and the band’s backing vocals sounded soulful and soaring.
The setlist was a mix of Santana’s greatest hits, and some from the band’s latest album, Blessings and Miracles. We were treated to classics like “Smooth,” “Maria Maria,” and “Evil Ways,” as well as newer songs like “Joy.”
As the concert went on, Carlos announced to the audience that he felt Jerry Garcia, among others, playing alongside him. I had a strong sense of my deceased brother Mike and me singing together again in a dingy, off-the-beaten-track bar in Tallahassee, Florida, our voices gliding through the air as if the seventies would never end.
Years fade, and with them, people and some of their talents. But Carlos remains one of the greatest guitarists of all time, and his band members are also masters of their craft. I was also particularly impressed by the drummer, Cindy Blackman Santana.
She’s been married to Carlos since 2010. All I can say is, her drumming blew us and the audience away. She played with such passion and intensity that it felt like a supernatural experience. I kid you not, I had goosebumps during her solo acts.
The Wikipedia article about her states: “Blackman cultivates spirituality in her musicianship. “I believe that music is so sacred that once you’re playing music you are doing the work of prayer, whether you’re conscious of it or not, because you have a focused intent,” says Blackman.
Hearing her and the band was holier than a prayer. On one hand, it brought everybody together, and I mean, EVERYBODY, including elders who danced the night away while donning cataract surgery sunglasses. What really struck me was the sight of a quadriplegic man who appeared to be in his thirties. He was stationed in his wheelchair on the upper level of the theater. The man could only move his head slightly, but had no facial expression.
I was really touched by this man’s determination to enjoy the concert despite his significant challenges. Then I wondered how he felt watching other audience members out of their seats, dancing, singing, and moving in perfect harmony with the music, flowing along with the oxygen.
I didn’t know if he was envious of the movement, or, on the other hand, simply savoring the sights, sounds, and tasting every moment like snacking on a buttery concoction.
At first, I thought how lucky the rest of us were to have mobility, until I realized maybe he was the lucky one. I liked to believe that he didn’t rush from one thing to the next, consumed to the point of falling in step with the armies of walking mummies, failing to appreciate simple things like a soft breeze brushing against a pair of moving limbs.
Perhaps this particular man piqued my curiosity because grief is an isolating experience, especially for me. It can be easy to feel like you’re the only one going through it, out of sync with the rest of the world (even if they are walking mummies!). As I scanned the venue, it appeared that the young man really was the only one in a wheelchair, but I hoped that the music would connect us all in the same spiritual way that Cindy feels it, in a miraculous way that would flush out our disunion and differences.
It was interesting to see Anna’s reaction when Cindy first performed her solo drum act. She shouted out, “She’s a woman!” in a way that said, “Yes, sister! We can do anything.”
Cindy Blackman Santana
Later, Carlos made a point to say that many men have passed out from drumming in the vigorous manner that Cindy is able to.
Wikipedia’s article further defines Cindy as “a rarity as a female jazz percussionist.”
It goes on to quote her, “In the past, there were a lot of stigmas attached to women playing certain instruments,” Blackman says. “Any woman, or anyone facing race prejudice, weight prejudice, hair prejudice … if you let somebody stop you because of their opinions, then the only thing you’re doing is hurting yourself. I don’t want to give somebody that power over me.”
The keyword in her quote is “power.” There’s a loaded definition behind that word, but when we pray in the purest spiritual realm, we transcend feelings of exclusion, rejection and not belonging. As a result, hair, nails, body image – the physical plane melts, sort of like in harmony with a slow, fluid dance. That’s the power of music, a special prayer to turn to for comfort. There’s something about the combination of lyrics and melody that can reach into the soul and make you feel less alone. And when I see someone, such as the quadriplegic man at Santana’s concert, who has pushed through what people can define as limitations, and reigns over his own power of thought, it reminds me that there is always hope.
Music is a universal language that brings people together from all walks – and wheels – of life. It doesn’t matter if you’re able-bodied or not, young or old, rich or poor. Music has the power to connect us all, and it can be a powerful tool for healing and hope. In this way, it is the most powerful prayer of all.
For years, my mom and I had a daily telephone ritual. When she called, her words, “How are you?” would slam me right through the phone like a bowling ball hitting a strike.
“Fine!” I would reply.
Things were never fine with my mom. Never. And, sooner or later, she’d push, and I’d be cornered into telling her the truth about what was really going on in our household, whether it involved the car breaking down or my kids losing their lunch money. Interestingly, I felt better after unloading the daily grievances.
Then my mom would often complain about the behavior of a few people — sometimes including me. She had her favorite targets, and I would sometimes find her complaints humorous, while other times I found them downright mean. But I always listened, because it would eventually turn out that she was right. At least 99% of the time.
It was as if she had a special lens that detected everyone’s flaws. She didn’t hold back; she was always honest, even if it was painful to hear. Admittedly, I spent years trying to hush her up, soften and polish her, but she continued to speak her mind. Period.
Finally, after I had children of my own, I eased up on my mom and gave her the space she needed to be herself. In fact, I owe a great debt to my children, because they were the ones who taught me just how endearing my mom was despite all her imperfections. Once I could step back from my own expectations and give her the space, I saw her humor, her creativity, and her incredible insights and sparks — many, many sparks! I was able to change my behavior toward her by asking myself the question, “Who was I to kill her spirit?”
Over the years, as I experienced betrayal and deception from others in my life, I appreciated my mom even more. She was my anchor, because I always knew where I stood with her.
As I backed off and eased up on my judgments of her, she learned the importance of tact and discretion on her own. She learned that sometimes, it’s better to say nothing at all. And this resulted from my not intervening and trying to mold her character in my image!
What I appreciate most about my mom is that she taught me the importance of having a voice by her own example. She was who she was, flaws and all.
I reflected a lot on my mom last week after I heard that Sinéad O’Connor had passed away. You wouldn’t think that the two women had much in common, but they shared a solidarity of pain and a few other things that connected them.
Anyway, I heard the news on the radio while I was driving in the car. “We have some sad news. The great Irish singer, Sinéad O’Connor, has passed away,” the news anchor announced. “She was 56 years old.”
My hands gripped the steering wheel tighter as I listened to the report. A wave of shock and sadness washed over me. I pulled over to the side of the road and started crying. As much as I couldn’t believe it, it was something I had worried about after the talented woman’s son, Shane, had died by suicide a year ago.
I felt as if I had lost yet another partner in our solidarity in pain. I sat there for a few minutes, just crying and listening to her music that the station started to play in a tribute to the late singer. No denying, she was a spitfire, but she was so much more.
Often when people hurt and grieve, they fall deeply inward. What never ceased to amaze me was how during her grief journey, Sinéad did not forget about other mothers who were in her position. She may have suffered from grief and mental illnesses, but she made room to remember others who hurt.
If you could look past her infamous moments, many of which were misunderstood and none of which she regretted, Sinéad O’Connor was a lifelong advocate for the vulnerable and, in essence, gave so many people faith and hope. In fact, during one of her interviews, she said she wanted her concerts to represent a church for some audience members, a place where they could find faith and hope.
I thought about how many people she had helped over the years. She had given them a voice, a platform, and a sense of community. She had shown them that they were not alone, and that they were worthy of love and respect.
Our society often encourages people to have diverse voices, stands and opinions. However, it is also true that people who speak out against the status quo, especially against the principles of the norm, often face backlash. Sinéad, like my mom, spoke their truth, even in the face of opposition. My dear friend Kit always reminded me that it’s easy to blend in with the crowd, but it takes real courage to be the lone voice of dissent.
Taking a deep breath, I started the car. I would go home and listen to Sinéad’s music some more. I would cry some more, but I would also remember the times when I was young and single, feeling as if I were the only person on Earth. But when I turned on the radio and heard Sinéad’s voice, I found the strength to not only keep moving, but to even kick up my heels and dance.
I imagined Sinéad, hopefully, finally at peace alongside her beloved son. I saw her calling it the way she saw it, in the company of my mom, their spitfire spirits floating around, sparking their own brand of music, driving everybody batty but never backing down.
I knew that the two spitfire figures would continue to inspire me, even in death. They had taught me the importance of speaking my truth, even when it was difficult. They taught me that it was okay to be different and that it was possible to find strength in your pain.
WTF? (Where's the faith?) 